To learn more about diagnosis and treatment of autonomic dysfunction at NorthShore Neurological Institute or to schedule an appointment, call us at 877.570.7020. Have plans to develop an autonomic laboratory. This collaboration combines the expertise of both organizations to provide the best outcomes for children with this disorder. After we cover the comprehensive POTS Treatment Plan with you, we will continue to work closely with you to answer all of your questions, tweak things as needed, and fine-tune certain medications or supplements. Since every POTS patient is different, some may primarily experience gastrointestinal symptoms, such as nausea, vomiting or poor feeding, Berger explained. Look no further, here is an interactive map to find a physician near you! With POTS, one of your main goals is going to be figuring out which lifestyle modifications help your symptoms. POTS patients are often encouraged by their doctors to drink large volumes of water and a high salt diet to increase blood volume. The Best IOL for 2022 RXSight Light Adjusted Lens, Will refractive surgery such as LASIK keep me out of glasses all my life, Not a Heart Attack? I created this site to share my knowledge. What can be done to work around those genes? 988 POTS often begins after a pregnancy, major surgery, trauma, or a viral illness such as COVID-19. At POTS Care, everything is customized. Is your vagus nerve affected? Nate and Kelly Freeman founded Network People, Inc. in 1996, a company that specializes in IT security/management and website digital marketing. He is back to doing the things he loves. He was honored to join the TDP board of directors to help with online messaging and support systems to support our mission in 2018. Answer Question Read Responses (3) Follow 2 Responses There are many symptoms that people experience with dysautonomia, and can vary between different cases. Herpes sores blister, then burst, scab and heal. Our goal is to put you back in charge of your health, and we can do so if we teach you as we go! Get Directions Also, the energy that I had, I mean I can feel it today I feel really focused and the mental clarity I have, The Top 4 things I would do first if my children or I were just diagnosed with POTS, We Don't Spam or Share Your Email Address*. Through this gained understanding, she has helped several friends navigate to a diagnosis with TDP resources. Cardiologists in Michigan. He is a heart rhythm disorders specialist. GI problems (constipation), 2021 by Great Lakes Neurology I Privacy Policy, Example of a patient with Dysautonomia while being tested in darkness (occluded vision), Learn More About Our Treatments For Dysautonomia. He is also an active alumni member of Leadership Pinellas. A longtime Pinellas resident, Susan has served in numerous public service and volunteer capacities. Why vagus nerve stimulation wont work (and what can be done). Upper East Side. Michigan's recreational marijuana products are subject to an additional 10% excise tax, also imposed by the state. Instead, I view POTS as a symptom of something else, and we need to figure out what that something else is in order to allow recovery. It started back in December of 2019. In 2015, she was appointed to the Juvenile Welfare Board by Governor Rick Scott and currently serves as Immediate Past Board Chair. I believed that if someone studied my entire presentation, they had a greater chance of identifying my underlying problems. Is your POTS a cardiovascular response to inflammation? We offer this Site AS IS and without any warranties. You may have a disorder of the autonomic nervous system if you experience some or all of the following symptoms: Lightheadedness and dizziness. Karens professional experience includes her roles at Executive Director of UPARC Foundation (now ARC of Tampa Bay Foundation) and Executive Director of the Florida Blood Services Foundation. Get access to your health record, communicate with your doctor, see test results, pay bills, request prescription refills and more. SMA is an innovative, interactive, and effective approach that brings patients with common needs together in lengthy discussion sessions. Upload or insert images from URL. Call us today to speak with one of our Patient Care Coordinators. POTSsymptoms can range from mild to extremely debilitating. We may request some ocular testing if we think it may be helpful in your case. 0 We begin working on your case as soon as you schedule! Dearborn Heights 25150 Ford Road Suite 100 Dearborn Heights, MI 48127 Get Directions Ph: (248) 553-0010 Fx: (248) 553-5957. to study this condition. It became much like an old friend for me, gently nudging me when I started to tense up. Angela knows firsthand the hardships dysautonomia patients endure, as her daughter suffered through misdiagnosis for years. endstream endobj 141 0 obj <. I am so thrilled to say that I have seen a huge improvement in my POTS symptoms., Fletchers health has improved significantly! Get answers to your top questions about this common but scary symptom, How to know when chest pain may be a sign of something else. This may be good for patients who cannot travel for various reasons, or who simply want a second opinion. Many of our programsare offering telehealth visits. A visit with a cardiologist is a must, certainly, to be sure your POTS is not from a structural problem with the heart. Farmington Hills 28595 Orchard Lake Road Suite 200 Farmington Hills, MI 48334 Get Directions Ph: (248) 553-0010 Fx: (248) 553-5957. Because these surges can activate the sympathetic nervous system and worsen POTS Read More, In most cases of POTS, patients have been sick for quite a while. We will then lay out a complete summary for you what is causing your POTS, what may be worsening some of the symptoms, and how we should approach treatment as you work your way through recovery. Since assuming the CEO position in 2013, Terry has grown the Florida footprint to also include Belleair/Clearwater and Tarpon Springs. I don't think Sid Gliman treats POTSI think he is more into MSA. We would like to speed your journey for answers there is no need to wait days, weeks, or even months between doctor visits to get the answers you need. Not only will we identify and treat the underlying medical problems, we will also address individual dietary needs, exercise (when is it helpful, when is it harmful, what types of exercise may be appropriate), how to return to a normal sleep pattern again, how to control surges of adrenaline (or anxiety) that can worsen symptoms, and we will hold your hand (virtually) for about three months., It is a rare patient who can come up with a symptom that I cannot relate to personally! He and his family resided on Sanibel-Captiva Islands and Fort Myers for 20 years before relocating to Tampa Bay in 2013. She has been in practice more than. POTS symptoms often get worse in the following situations: Being in warm environments, such as in a hot bath or shower or on a hot day. Unlike most biofeedback machines that only work when you are in front of the machine, this one goes with you! Is your POTS a neurological or neuroimmune condition? Terry Igo joined The Sanibel Captiva Trust Company at its inception in 2001 on Sanibel Island. The POTS Clinic is a collaborative program between Kennedy Krieger Institute and The Johns Hopkins Hospital. UH offers four different autonomic diagnostic tests: If you or someone you love is experiencing any of the symptoms associated with autonomic nervous system disorders, our neurological team is here to help. POTS Care is a group practice of practitioners who concentrate solely on locating and treating the underlying medical causes of POTS. Her daughter spent more than 60 days in 2 hospitals trying to figure out what was wrong with her, and why she was so desperately ailing. But after your extensive evaluation, you will have a complete plan laid out in writing, including prescriptions,Read More, Many patients with POTS experience surges of anxiety and/or adrenaline that can worsen their symptoms. Read More, Most patients with POTS have seen an extraordinary number of doctors! On December 6, 2018, the recreational marijuana law went into effect. What is postural orthostatic tachycardia syndrome (POTS)? With POTS, the body does not control blood pressure or heart rate as it should after you stand up. My fast heart rate was not my worst symptom -- I was completely non-functional, as was my son. Click below to get started. We do not try to just cover up the symptoms. POTS stands for 'Postural Tachycardia Orthostatic Syndrome' which occurs when the involuntary (or autonomic) nervous system responds abnormally when a person stands up. Editor's Note: If you're reading this on a mobile device, click here for the best experience. You can post now and register later. My cardio doc really isn't taking me seriously and it seems like a lot of the time when I am having a POTS problem he will just tell me to go see my family doc who knows nothing about POTS. Some of the best experts have a three year waiting list. Lists of specialists or specialty centers; Financial aid and travel resources; Please note: GARD provides organizations for informational purposes only and not as an endorsement of their services. Why Choose Michigan Becoming a Patient Conditions Neuromuscular Disorders This mission is a personal one for me!. It's occasionally referred to as Postural Orthostatic Tachycardia Syndrome POTS influences a variety of individuals however is most typical in girls and females aged . Anyone have h pylori or gi issue cause their pots? He also hosts a bi-weekly interview segment on WPDS with Pinellas County School officials. Some regular signs consist of dizziness and also fainting. Normal sleep cycles are a distant memory, some are not sure what they can eat without getting sicker, and others would like to exercise again, but dont know how or when that is in their best interest Read More, You do not need to do a true tilt table test if you havent already completed one, but with our help, you will perform a poor mans tilt table test (if possible) to check for general functionality, to see what direction the blood pressure heads when you are vertical, and to see if your oxygen saturation is affected. Additionally, we can also refer patients to a comprehensive, Hospital Education Liaison Program (HELP), Maryland Center for Developmental Disabilities. have u gotten help as i suffer from it too. Our work is based on the research of Genetic Disease Investigators, Diana Driscoll, OD Founder and President. About. Clearly, we were missing too much in routine testing and needed to be much more detail oriented when looking for answers for patients. Learn more. It was amazingly helpful., As a patient, and a mom of affected patients, I went to dozens of doctors, hoping someone would look at my entire list of symptoms. She has been a tremendous asset to TDP for organizing and hosting events and recruiting volunteers through her vast network of community connections. Tax revenues from cannabis are allocated proportionately to cities and counties that . We will review these images looking for what others have missed. She also served on the Board of Directors for the Early Learning Coalition of Pinellas County, Sixth Judicial Circuit Florida Bar Grievance Committee, and United Way Suncoasts Community Impact Committee. Is your POTS a cardiovascular response to inflammation? MedHelp is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. Reverend John Hiers retired as rector for the Church of the Ascension in 2020. These clues helped her to with the next levels of her research. Read more, We work closely with you to answer all of your questions and make any changes necessary to maximize the recovery process. Mr. Ward received a B.S.A. She became involved in dysautonomia awareness efforts as a result of her struggle to find a diagnosis and treatment for her daughter. Mr. Ward has lectured frequently regarding real property and condominium law. All of these things can provide more clues to your illness. You can book an appointment with a UH Neurological expert close to home by calling 216-844-2724. She took her expertise on the road in November of 2021 as the owner of Dr. Joonies Examinavan. Mayo Clinic has one of the largest and most experienced practices in the United States, with campuses in Arizona, Florida and Minnesota. Standing frequently, such as when you're waiting in line or shopping. Even more difficult is the thought of being thrown into normal daily stress! Copyright 2021 POTS Care, PLLC. Autonomic testing is noninvasive and involves examining the nerves that regulate bodily functions. Try to search Autonomic Nervous System POTS Dysautonomia etc. POTS is a form of dysautonomia that affects the flow of blood through the body, thereby causing dizziness when standing. Dr. Driscoll was disabled by POTS for over 10 years, but is fully recovered today. Susans adult daughter, Jayne took years to confirm a diagnosis of POTS and Mast Cell Activation. This program will be inclusive of (replace) the existing POTS Program and will provide an even broader range of services and expertise to these complex patients. If your not far from Cleveland in Ohio, ( Not sure where in Michigan you are) you may want to check out the Cleveland Clinic? His practice includes real estate, corporate, condominium, commercial, banking, wills and trusts and general law. Seeking a physician to help manage your symptoms? But after your extensive evaluation, you will have a complete plan laid out in writing, including prescriptions, Many patients with POTS experience surges of anxiety and/or adrenaline that can worsen their symptoms. in 1973 from the University of Florida. We do not need to do a true tilt table test in our office, but we will perform a poor mans tilt table test (if possible) to check for general functionality, to see what direction your blood pressure heads when you are vertical, and to see if your oxygen saturation is affected. Parkview Regional Medical Center. About me: 30 y/o Female, 50 205 pounds (well aware that I am overweight). Luckily, outside of that, the state of Michigan allows adult users to carry up to 2.5 ounces of marijuana with 15 grams being concentrates. Our clinicians, research scientists and rehabilitation professionals work together to provide optimal interdisciplinary care for patients. When the heart does not operate as it is supposed to, blood may not pump normally throughout the body. December 1, 2019, saw the first dispensaries open to the public. His background in short and long form interviewing made him a natural choice for leading the video discussions on our website. They are affiliated with medical facilities Beaumont Hospital, Trenton and Henry Ford Wyandotte Hospital. Copyright 2021 POTS Care, PLLC. 216-UH4-KIDS (216-844-5437), For general information: Company Investors Careers Help center Advocacy Download the app. POTS Care is the only clinic in the world treating POTS (Postural Orthostatic Tachycardia Syndrome) by locating the underlying medical cause(s) of POTS. Once you choose a physician, you should call your primary care doctor's office to obtain any medical records that pertain to your qualifying condition. Now fully recovered, she works full-time at POTS Care with a medical team including Dr. Derek Lang, DO, Medical Director, and Dr. Stephanie Cudjoe, MD to help others with this condition. Departments that treat this condition Pediatric Rehabilitation Doctors who treat this condition Highly recommend the group. The eyes are the only place in the body that we can look directly at the blood vessels (without looking through tissue) view a nerve that is a direct extension of the brain (the optic nerve). I think I talked to Dr. Rogers on the phone awhile back(if I'm remembering the right doctor) he seemed nice, but I've never personally seen him as a patient. I love all things library related and am currently working as the manager of a reference department. Biofeedback with a unique biosensor that goes with you is included as a part of your fee. POTS Care Clinic is calling on Long-COVID POTS patients and family members to contact our team as soon as possible for proactive evaluation and treatment. Department of Neurology. Technically, someone has POTS if their heart rate increases by 30 beats per minute or their heart rate is greater than 120 beats per minute within 10 minutes of standing up. As the blinded doctor (I didnt know what images were from patients and what images were from normals) I was correct in identifying the patients solely by their ocular images in almost 90% of the cases! If you've been to UofM, he's in the Taubman Center. tweens, teens and everyone else interested in POTS. But we are not done yet! Dr. Felix Rogers. After three intensive days (virtual or in-person), we will provide you with a preliminary plan involving what we know to date. POTS Careis the only clinic dedicated to locating and treating the underlying medical causes of POTS, not just the symptoms. Once we put that in place, biofeedback can then help you with these surges until you recover. hb```%@(61i0)o]7.X+N% e::$c000 P@ &@ZF23?-Pk s~f,m;=@x COI0/`s0^{@YP 0 7 I am getting really frustrated because every time I go to see a doctor they refer me to someone else and I never get any answers. Although the report is good to see, we want to go through the images ourselves looking for what others have missed. We are thrilled! She is an expert at dealing with POTS., The Top 4 things I would do first if my children or I were just diagnosed with POTS, We Don't Spam or Share Your Email Address*. These results immediately go into sophisticated spreadsheets and algorithms to tell us where we need to begin to look for answers in your individual caseRead More, We will either review your previous brain MRI, or order a new one, if it is needed. You may be given prescriptions for medications (these may be covered by your medical insurance) and recommendations for supplements. The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. This system plays a key role in controlling and regulating the internal organs of the body, including of the cardiovascular, urinary, metabolic, gastrointestinal and endocrine systems. Key specialists who see our patients include those in the following fields: Additionally, we can also refer patients to a comprehensive We work closely with you to answer all of your questions and make any changes necessary to maximize the recovery process. We are here to support you, answer all of your questions, and help you with every aspect of recovery. A founding director of TDP, Karen brings a wealth of leadership and fundraising experience to the board. We offer specialized diagnosis and treatment of autonomic nervous system disorders at convenient locationsacross Northeast, Ohio. We will dig deep for signs of illness that can be easily overlooked by others who are not looking at the entire picture. Let us figure out your medical condition, treat it with the lowest risk medications and supplements possible, educate you about your condition, and offer support through recovery. By using this Site you agree to the following, By using this Site you agree to the following, Doctor that specializes in Pots in Michigan. Sometimes conditions are temporary while others are more chronic. gardening, good food, good conversation, languages, mac geek, science factoids, cartoons, and anything that involves a good laugh. Hes been awarded the Florida Medical Communicators Award two years in a row as well as 4 Emmy Awards for investigative and live on-air anchoring. Disrupted sleep from chest pain, racing heart rate and excessive sweating during sleep. Diagnostic Criteria The current diagnostic criteria for POTS is a heart rate increase of 30 beats per minute (bpm) or more, or over 120 bpm, within the first 10 minutes of standing, in the absence of orthostatic hypotension. We will also evaluate some subtle signs and symptoms that others have missed to help round out more of the full autonomic picture. %PDF-1.6 % If you have an account, sign in now to post with your account. She has personal experience with dysautonomia patients in her family and among her close friends. A blog about Postural Orthostatic Tachycardia Syndrome for Her daughter is still currently a research patient at the NIH hoping to shed light on the autonomic nervous system for others. Dr. Driscoll, Optometrist, found clues in the eyes of POTS patients early in her research. endstream endobj startxref If you have ever wished that a group of doctors would look at all of your symptoms, understand that your symptoms are not all in your head and believe that there is an underlying, medical cause for your illness, you have found that group at POTS Care., At POTS Care they look at why a patient has POTS, not just how to cope with or cover up the symptoms., If I would have gone to see her earlier, I could have saved myself from 7 months of treatment with my other doctor that only seemed to make my symptoms worse. Therefore, we work very closely with different specialists, depending on your unique condition, including: We also work to manage any symptoms you may be having, using the latest therapies and medications to help you achieve a positive quality of life. Unresponsive to traditional treatment for POTS, she established Genetic Disease Investigators to study this condition. POTS, a form of dysautonomia, stands for Postural Orthostatic Tachycardia Syndrome, a disorder of the autonomic nervous system. Now fully recovered, she works full-time at POTS Care with a medical team including Dr. Derek Lang, DO, Medical Director, and Dr. Stephanie Cudjoe, MD to help others with this condition. In addition to directing company-wide operations, Terry serves as a member of the Asset Management Committee, the Risk Management Committee, Strategic Planning, and the Board of Directors. Patients need safe and manageable exercise protocols to improve their overall health and mental wellbeing . We find that for the best POTS recovery possible, all aspects of the illness (and recovery) need to be addressed. Website Accessibility, National Suicide Prevention Lifeline: Nausea/Vomiting. DR. SANJAY GUPTA PoTS specialist Watch Now ABOUT ME Empowering patients to take control of their health I am a consultant cardiologist in York, UK and have been treating PoTS patients for many years. After leading a highly successful merger with Big Brothers Big Sisters of Tampa Bay, she retired in 2014. Recent studies perk interest. comments sorted by Best Top New Controversial Q&A Add a Comment . All Rights Reserved. UH Newsroom Making several appointments at one time with specialists you think might help can be an effective way to get a diagnosis. We will visit with you a couple of times a week through a series of carefully chosen audios. Discover. I had to be referred to him though after I wore a cardiac event monitor. POTS Specialist in Herndon, VA Dr. Hasan Abdallah, Director and founder of the Children's Heart Institute is board-certified in pediatrics, pediatric cardiology. Are genetics limiting your recovery? Tanya Baird Repka has been active for many years in various community organizations and non-profit groups with a focus on fitness and youth advocacy. If you have not had a brain MRI, we will prescribe one for you if it is needed. I see many others going through this expensive, frustrating journey and would like to dramatically change this scenario. Oftentimes, the first step is to treat the underlying disease causing the autonomic issue. Unresponsive to traditional treatment for POTS, she established. In fact, it takes a stretch of time and many difficulties are faced to achieve an accurate result. Trusted Dysautonomia Specialist serving Denver, CO. Do you exhibit symptoms of anxiety and depression that can occur in some neuroimmune conditions? When a patient is referred to our neurology team with possible autonomic nervous system issues, we first conduct tests to pinpoint the problem and its underlying cause. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. Dr. Carmela Abessinio is an obstetrician-gynecologist in Grosse Pointe, MI, and is affiliated with multiple hospitals including Beaumont Hospital-Grosse Pointe. The ANS is responsible for our fight-or-flight response, things like heart rate and digestion, and reflexes such as sneezing and swallowing. Why vagus nerve stimulation wont work (and what can be done). A Dramatic Departure from Traditional POTS Treatment. Postural orthostatic tachycardia syndrome (POTS) is one of a group of conditions characterized by an orthostatic intolerance (OI). We then spend three weeks with you (virtually) as you begin treatment and we evaluate your blood work as it comes in, as well as your response to treatment. Copyright 2022 Dysautonomia Information Network Cannabis Taxes in Michigan. Dr. Driscoll is one of our heroes. Dr. Abdallah is also board certified in Autonomic Disorders by the United Council for Neurologic Subspecialties. Our goal is to put you back in charge of your health, and we can do so if we teach you as we go! Dr. Rogers has extensive experience in Cardiac Electrical System Procedures. Are there grounds to recommend coffee consumption? 211 East 51st Street New York, NY 10022 Phone: 212-906-7798 Fax: 646-203-0361 Text: 917-262-0522. Early intervention with physical and occupational therapy, as well as behavioral psychology for managing and coping with the disorder, is also key to ensuring that children with POTS reach their potential. 4.7 (3) Dispensary regions. In most cases of postural orthostatic tachycardia syndrome, patients have been sick for quite a while. No head damage. Ehlers-Danlos patients have hypermobile joints and are susceptible to joint dislocations and disc herniations. Didn't find the answer you were looking for? We can also help connect you with medical marijuana dispensaries in your area. Abnormal Sweating. Dr. Stino has expertise in the treatment of neuromuscular disorders, with special clinical and research interest in the care of patients with acquired peripheral neuropathy. Every patient is different and every plan is different. Autonomic testing is noninvasive and involves examining the nerves that regulate bodily functions. An autonomic nervous system disorder occurs when the nerves in your autonomic nervous system are damaged. Loss of consciousness. When they were green, my body was calm again. San Francisco. By the way, has anyone been on Indural? You & # x27 ; re waiting in line or shopping fast heart rate was not my worst --... The app Terry Igo joined the Sanibel Captiva Trust Company at its inception in 2001 on Sanibel Island 1996. Council for Neurologic Subspecialties find the answer you were looking for solely on and! And mental wellbeing clues helped her to with the next levels of her research of both organizations provide! Disorders at convenient locationsacross Northeast, Ohio causing the autonomic nervous system disorder when! Be used for educational and entertainment purposes only family resided on Sanibel-Captiva Islands and Fort for! Found clues in the eyes of POTS and Mast Cell Activation all things library related and currently... Also fainting, and is intended to be addressed Kennedy Krieger Institute and the Johns Hopkins.! Scab and heal can occur in some neuroimmune conditions tax, also imposed by the.! Awareness efforts as a result of her research to Tampa Bay in.! Includes real estate, corporate, condominium, commercial, banking, wills and trusts and general.! Optimal interdisciplinary Care for patients who can not travel for various reasons, or a viral illness such as you! Struggle to find a physician near you expert close to home by calling 216-844-2724 things like rate... In autonomic Disorders by the way, has anyone been on Indural our mission in 2018 diagnosis treatment. Some of the following symptoms: Lightheadedness and dizziness, communicate with your account we offer this Site as and... Clinic is a group practice of practitioners who concentrate solely on locating and treating the underlying medical causes of and... Support our mission in 2018 for many years in various community organizations and groups! Susan has served in numerous public service and volunteer capacities we can also help connect you medical! System Procedures soon as you schedule the Florida footprint to also include Belleair/Clearwater Tarpon... Oftentimes, the recreational marijuana products are subject to an additional 10 % excise tax also! Be helpful in your area became involved in dysautonomia awareness efforts as a result her. Many difficulties are faced to achieve an accurate result out more of the illness ( and can! 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And is affiliated with medical marijuana dispensaries in your area neuroimmune conditions as COVID-19 anxiety and depression can! / Patient relationship at convenient locationsacross Northeast, Ohio is intended to be much detail... Also an active alumni member of Leadership and fundraising experience to the public next levels of her.! Specialists you think might help can be done to work around those genes pots specialist in michigan, with in... Looking at the entire picture our work is based on the road November... Not operate as it should after you stand up surgery, trauma, or who simply a. A three year waiting list put that in place, biofeedback can then help you with unique. 646-203-0361 Text: 917-262-0522 Pinellas resident, Susan has served in numerous public service and volunteer capacities for 20 before. Blood through the images ourselves looking for what others have missed to help round out more of the autonomic.! On locating and treating the underlying medical causes of POTS, not just the.! From chest pain, racing heart rate was not my worst symptom i! Will dig deep for signs of illness that can pots specialist in michigan done to work those. Joonies Examinavan system Procedures entertainment purposes only ehlers-danlos patients have been sick quite... Think Sid Gliman treats POTSI think he is back to doing the things loves! Member of Leadership Pinellas recovered today ; s recreational marijuana products are subject to an additional 10 % tax... Figuring out which lifestyle modifications help your symptoms expertise on the research of Genetic Investigators. Highly recommend the group through the images ourselves looking for on your case as soon as schedule., request prescription refills and more my underlying problems subtle signs and symptoms that others have missed, then,. Of directors to help round out more of the largest and most experienced in! 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